Mya fund hits £11,500 mark

Mya Simpson with her parents Marina and Shaun at their house in Ashington which needs modifying as Mya has Infantile Parkinsons.
Mya Simpson with her parents Marina and Shaun at their house in Ashington which needs modifying as Mya has Infantile Parkinsons.
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AN appeal to help make a youngster’s life easier is almost a quarter of the way to its target.

Four-year-old Mya Simpson was diagnosed with infantile Parkinson’s disease and suffers from severe abnormalities.

Her parents set up a fund in a bid to raise £50,000 to adapt their home in Barnston, North Seaton, to help them cope with her needs.

Shaun, 43, and Marina, 38, have been fundraising to be able to install a disabled bathroom and a bigger bedroom with hoists to allow Mya, one of three children, to get around more easily.

So far the fund has raised £11,500.

Mya’s godmother Jill Angus said: “Mya can’t sit up unaided and simple tasks like carrying her up and down stairs are becoming increasingly difficult for her parents as she continues to grow.

“She needs round the clock care, so this money really will help to make a massive difference to the whole family.”

Mya was diagnosed with the disease, also known as tyrosine hydroxylase deficiency, shortly after birth, and while other cases are known of, Shaun and Marina have been told that Mya may be the first in the world to have been born with the condition.

Shaun said: “Mya is unable to make her muscles move the way normal children do.

“She can’t walk and she is unable to sit up without help, although with medication she has improved, and she moves quite a bit now.

“She had to have a tracheotomy fitted when she was just a few months old, which requires regular suctioning to enable her to breathe.”

A three-hour sponsored zumbathon is taking place at Ashington Welfare on Saturday from 1pm, with Lindsey Humble.

Limited spaces are available at £10.

Call Jilly on 07742 693136 for more details.

Wrist bands will also be available for £2.

Follow Mya’s progress on Facebook at www.facebook.com/pages/The-Mya-Simpson-Fund and Twitter @myajsimpsonfund