Family fundraising for their girl with locked-in syndrome

Eve Anderson of Ashington who has locked-in syndrome seen with her mother Lee Miller and Stepfather Peter Miller of Haydon Road at Ashington.
Eve Anderson of Ashington who has locked-in syndrome seen with her mother Lee Miller and Stepfather Peter Miller of Haydon Road at Ashington.

AN Ashington family are well on their way to raising £25,000 for their little girl who has locked-in syndrome.

Two years ago this month, on February 14, 2011, a then eight-year-old Eve Anderson was a typical youngster, full of fun and active.

But she took ill that day and was quickly rushed to Wansbeck General Hospital before being transferred to the Great North Children’s Hospital at the RVI in Newcastle.

Eve was diagnosed as having suffered from a massive brain haemorrhage and was given life-saving surgery at the RVI.

Following the operation, Eve could no longer move, talk, communicate or do any of the things she had done prior to her collapse.

And an MRI scan revealed a brain tumour.

After more tests, Eve received an intensive six-week course of radiotherapy and has been left in a completely disabled state, requiring care 24 hours a day, seven days a week.

Two years on she is still unable to move or talk, and can only inconsistently communicate by blinking.

The family have been told Eve has a form of locked-in syndrome whereby she is cognitively intact and understands everything that is going on, but on the outside she cannot offer any movement at all.

She is thought to be the youngest person ever to be diagnosed with the condition.

Step dad Peter Miller has embarked on a number of fundraising events and said it is amazing how much money people have helped raise for her.

He said: “People who do not even know her have been raising money, they have really taken Eve to their hearts.”

The family set an initial target of raising £25,000 to help Eve.

Peter added: “The fundraising didn’t start until about a year after she had fallen ill, it’s such a huge amount of money to raise.

“And through all our events we have raised around £20,000 so far.

“Eve is growing up and so we will always need to buy new equipment and things for her, so we won’t just stop when we reach the initial target.”

Eve constantly receives physiotherapy, occupational therapy, and speech and language therapy amongst other treatments.

She has been described as an inspiration to all her friends and family and whoever comes into contact with her.

The family home in Haydon Road, where Eve, her mum Lee, step dad Peter, and younger sister and brother Mia and Jed, live, has been adapted for her needs.

On Saturday, February 16, a fundraiser will be held at West Allotment Social Club in North Tyneside, with The Who tribute band The Whodlums and acoustic singer Leon Millar performing.

A raffle will also take place and tickets for the night are £5 and must be bought in advance. For ticket details contact Laura Mason on 07508 775434

A black tie dinner is also planned for this year, along with a number of other events.

For more information on the charity visit the Facebook group