Top award win for campaigner George

George Pegg, with his mum Lilian and younger brother John.
George Pegg, with his mum Lilian and younger brother John.

A youngster from the county has been named a campaigner of the year after he wrote to the Primte Minister to ask for his help.

Eleven-year-old George Pegg, who has Duchenne muscular dystrophy, wrote to David Cameron in June asking for his support to fund a new drug that could help him walk longer.

The Blyth youngster, and five others, have now jointly been named as Muscular Dystrophy UK’s Campaigner of the Year by the charity’s President, Sue Barker on Saturday.

George and his mum Lillian and dad, also George, even braved TV cameras at Westminster to talk about his letter calling for the drug Translarna to be funded.

Translarna is the first genetic therapy for Duchenne muscular dystrophy to be available in Europe, but no agreement on funding has yet been reached in the UK, Muscular Dystrophy UK has campaigned for NHS England to make Translarna available.

George has been on a clinical trial of the drug since he was five-years-old.

Lillian Pegg said: “We are so proud of George for winning the award and it was amazing to meet Sue, who was just so nice and down to earth.

“We are always proud of George and the way he conducts himself, but at the age he is, winning something like this is really special.

“He wants to do something not only to help himself, but also all the other boys too.

“We are really proud of them all today.”

Sue said: “A campaigner is someone who makes sure an important message is heard and understood.

“George and the other boys made sure their message went straight to the top. They each wrote to the Prime Minister and travelled to Downing Street to deliver their letters in person.

“George spoke to news reporters there, showing great courage and maturity.

“Speaking up can be a challenging, tiring, and at times, very difficult thing to do. George’s parents must be incredibly proud.”

In his letter to Mr Cameron, George wrote: “I know that I won’t always be able to walk, but I would like to for as long as I can, Translarna is helping me to do that.

“Please help me to keep taking the drug and other boys who it could be helping having it as soon as possible.”